Frequently Asked Questions (FAQ)
|
If you are recently diagnosed with
epilepsy or seizure disorder, chances are you are pretty
frightened of the unknown. Hopefully, this quick list of
often-asked questions can provide some much needed
answers. Additional information can be provided through
the links below.
As always, we would welcome any
questions you might have. In Atlanta call (678)
306-1210, or statewide call toll-free (800) 527-7105.
|
This page is intended to provide the basic
information about epilepsy and seizure disorders
to the general public. It is not intended to,
nor does it, constitute medical advice, and
readers are warned against changing medical
schedules without first consulting a physician. |
What is epilepsy?
Epilepsy is a neurological condition
that from time to time produces brief disturbances in
the normal electrical functions of the brain. Normal
brain function is made possible by millions of tiny
electrical charges passing between nerve cells in the
brain and to all parts of the body. When someone has
epilepsy, this normal pattern may be interrupted by
intermittent bursts of electrical energy that are much
more intense than usual. They may affect a person's
consciousness, bodily movements or sensations for a
short time.
These physical changes are called
epileptic seizures. That is why epilepsy is sometimes
called a seizure disorder. The unusual bursts of energy
may occur in just one area of the brain (partial
seizures), or may affect nerve cells throughout the
brain (generalized seizures). Normal brain function
cannot return until the electrical bursts subside.
Conditions in the brain that produce these episodes may
have been present since birth, or they may develop later
in life due to injury, infections, structural
abnormalities in the brain, exposure to toxic agents, or
for reasons that are still not well understood. Many
illnesses or severe injuries can affect the brain enough
to produce a single seizure. When seizures continue to
occur for unknown reasons or because of an underlying
problem that cannot be corrected, the condition is known
as epilepsy. Epilepsy affects people of all ages, all
nations, and all races. Epilepsy can also occur in
animals, including dogs, cats, rabbits, and mice.
What is the difference between seizures and
epilepsy?
Seizures are a symptom
of epilepsy. Epilepsy is the underlying tendency of the
brain to produce sudden bursts of electrical energy that
disrupt other brain functions. Having a single seizure
does not necessarily mean a person has epilepsy. High
fever, severe head injury, lack of oxygen--a number of
factors can affect the brain enough to cause a single
seizure. Epilepsy, on the other hand, is an underlying
condition (or permanent brain injury) that affects the
delicate systems which govern how electrical energy
behaves in the brain, making it susceptible to recurring
seizures.
Which doctors treat epilepsy?
Neurologists, pediatric neurologists,
pediatricians, neurosurgeons, internists and family
physicians all provide treatment for epilepsy.
Specialized care for people whose seizures are difficult
to control is available in large medical centers,
neurological clinics at university and other hospitals,
and from neurological specialists in private practic
Is epilepsy ever contagious?
No, epilepsy is never contagious. You
cannot catch epilepsy from someone else and nobody can
catch it from you.
What should I consider if there has been only a
single seizure?
When a child or adult has never had a
seizure before, the first seizure should be followed by
a careful medical evaluation to help the doctor decide
whether to recommend treatment with seizure preventing
drugs, or to wait and see whether it occurs again. The
most important factor in deciding whether to begin drug
treatment for a single seizure is the probability of
further seizures. Physicians use both diagnostic tests
and careful evaluation of the seizure itself to
determine how likely it is that the patient may have
more seizures in the future. Age, family history, and
possible causes of the seizure are among the factors
that are considered. Non-medical issues, such as loss of
driver's license or worries about impact on employment,
may also enter into the decision.
What causes epilepsy?
In about seven out of ten people with
epilepsy, no cause can be found. Among the rest, the
cause may be any one of a number of things that can make
a difference in the way the brain works. For example,
head injuries or lack of oxygen during birth may damage
the delicate electrical system in the brain. Other
causes include brain tumors, genetic conditions (such as
tuberous sclerosis) , lead poisoning, problems in
development of the brain before birth, and infections
like meningitis or encephalitis. Epilepsy is often
thought of as a condition of childhood, but it can
develop at any time of life. About 30 percent of the
125,000 new cases every year begin in childhood,
particularly in early childhood and around the time of
adolescence. Another period of relatively high incidence
is in people over the age of 65.
What should I do if I suspect a seizure
disorder?
If you think you or a loved one might
be having seizures, it is important to discuss with your
physician what has been happening. Keep a record of how
often the unusual episode occurs, the time of day it
happens and what form it takes. Giving the doctor this
information as it will help him or her to determine
whether what you are describing might be a type of
epilepsy.
How is epilepsy diagnosed?
The doctor's main tool in diagnosing
epilepsy is a careful medical history with as much
information as possible about what the seizures looked
like and what happened just before they began. A second
major tool is an electroencephalograph (EEG) . This is a
machine that records brain waves picked up by tiny wires
taped to the head. Electrical signals from brain cells
are recorded as wavy lines by the machine. Brain waves
during or between seizures may show special patterns
which help the doctor decide whether or not someone has
epilepsy. Imaging methods such as CT (computerized
tomography) or MRI (magnetic resonance imaging) scans
may be used to search for any growths, scars, or other
physical conditions in the brain that may be causing the
seizures. In a few research centers, positron emission
tomography (PET) imaging is used to identify areas of
the brain which are producing seizures.
How can people guard against having seizures?
A person with epilepsy can help
control his or her seizures by taking the prescribed
medication regularly, maintaining regular sleep cycles,
avoiding unusual stress, and working closely with his or
her physician. Regular medical evaluation and follow-up
visits are also important. However, seizures may occur
even when someone is doing everything he or she is
supposed to.
How is epilepsy treated?
Epilepsy may be treated with drugs,
surgery, or a special diet. Of these treatments, drug
therapy is by far the most common, and is usually the
first to be tried. A number of medications are currently
used in the treatment of epilepsy. These medications
control different types of seizures. People who have
more than one type of seizure may have to take more than
one kind of drug, although doctors try to control
seizures with one drug if possible. A seizure preventing
drug (also known as an antiepileptic or anticonvulsant
drug) won't work properly until it reaches a certain
level in the body, and that level has to be maintained.
It is important to follow the doctor's instructions very
carefully as to when and how much medication should be
taken. The goal is to keep the blood level high enough
to prevent seizures, but not so high that it causes
excessive sleepiness or other unpleasant side effects.
What is the Ketogenic diet?
The ketogenic diet, which is very
high in fats and low in carbohydrates, was first
developed almost 80 years ago. It makes the body burn
fat for energy instead of glucose. The diet was used to
prevent seizures in children, but fell out of use as new
medications were developed. Over the past few years,
largely through the efforts of Hollywood producer Jim
Abrahams, whose son Charlie was helped dramatically by
the diet, and the continued commitment of enthusiastic
parents and physicians who believed in its potential,
the ketogenic diet has re-emerged as a major treatment
when childhood seizures are hard to control. More
research is being done to learn about the underlying
reasons for the diet's positive effect.
When carefully monitored by a medical
team familiar with its use, the diet helps two out of
three children who are tried on it and may prevent
seizures completely in one out of three. It requires
very precise, measured changes in the kinds of foods
that the child eats. It may also be administered by
adding a special type of oil to a more standard diet. It
is a strict diet, and takes a strong commitment from the
whole family. The ketogenic diet is not a do-it-yourself
diet. It is a serious form of treatment that, like other
therapies for epilepsy, has some side effects that have
to be watched for. At present the ketogenic diet is used
primarily in children, but research is going forward to
evaluate its potential as a treatment for adults as
well.
|